Simon Kirby mp is the Patron Sussex & Kent ME/CFS Society.
There is a desperate need for more help for Fibromyalgia ME/CFS suffers in Sussex. Plus an urgent need for Doctors who understand how to diagnose these chronic illness to be registered in someway.
The biggest complaints from suffers is Doctors total disregard to these illness.
Plus suffers are having major problems with getting DLA because the Doctors from the DLA who visit claimants have no idea about the illness or the examination guidelines have no real content reverent to how the illness effects people.

Many people are suffering very severe hardship because of this.

It is clearly understand that the Government is having to tighten up finances and make cuts where possible but cut backs in health are counter productive to people’s quality of life.

SUICIDE
Urgent research needed in to suicide rates of suffers.
(90% of people who go down are usually have lived very active lives I know of two cases where people have not been able to put up with laying in bed day after day)

Take the sad case of Lynn Gilderdale, 31, a young life lost from the hell of M.E.
Compared to the other causes of suicides.

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*ME has been classified by the World Health Organization (ICD 10 G 93.3) as a neurological illness affecting approximately 200,000 individuals within the UK. Of this number, approximately 25% of those affected will go on to develop severe ME which is an extremely debilitating illness. Sometimes it lasts for years and in some cases, even decades, often rendering the sufferer completely housebound, wheelchair & bedbound and dependent upon carers for their everyday needs. The Chief Medical Officer's Report on the subject of CFS/ME (Chronic Fatigue Syndrome/Myalgic Encephalomyelitis) issued in January 2002 recognises that "CFS/ME should be classed as a chronic condition with long term effects on health, alongside other illnesses such as multiple sclerosis and motor neurone disease."
To date there is no known specific medical diagnostic test to determine or confirm a correct diagnosis, nor is there any specific treatment for this condition.
David Joe Neilson