Am I the only one in Manchester, with MS?
Elvira Braun | 09.01.2006 20:32 | Health
I was diagnosed with MS in 2001 and its took me until 2005 to admit to myself that I suffer with MS.
My new years resolution was to seek out and obtain support to help me deal with being an MS suferer.
I have found out, to much disgust that there is either little or no support in the South Manchester area for people with MS.
I have checked out the websites of various MS organisations, including the MS Society but among confusing sites have had no joy, but I am able to leave such organisations money in my will.
I have found that the only support available is a thearpy centre where I can go and sit in a de-compression chamber for two hours, take a spar bath or participate in Yoga sessions ( I don't think I could get my legs around my head).
As John Leech is my local MP and the Labour Party may wish for me to vote for them, can they possibly come up with any solution to this problem?
At present I feel that I am the only person in South Manchester with not just MS but a recognised disability.
I would be intrigued to know what Mr. Leech or the Labour Party intend to do for people like myself, who have on-going medical conditions?
What we need is acess to facilities and easy acess to support and information to help us deal with the general day to day of living with MS e.g; some one to talk too who is in the same boat.
I am not ready to die yet and do not wish to be treated as though I am, or like an idiot.
You should remember that disabled people do have the right to vote and do have the intelligence to use our vote in a stand, where we will be counted.
I am also not brain dead yet, my legs may not work properly any more but my brain is still active!
Remember that and do not let any one ever think otherwise.
Patricia Gough
MS suferer
My new years resolution was to seek out and obtain support to help me deal with being an MS suferer.
I have found out, to much disgust that there is either little or no support in the South Manchester area for people with MS.
I have checked out the websites of various MS organisations, including the MS Society but among confusing sites have had no joy, but I am able to leave such organisations money in my will.
I have found that the only support available is a thearpy centre where I can go and sit in a de-compression chamber for two hours, take a spar bath or participate in Yoga sessions ( I don't think I could get my legs around my head).
As John Leech is my local MP and the Labour Party may wish for me to vote for them, can they possibly come up with any solution to this problem?
At present I feel that I am the only person in South Manchester with not just MS but a recognised disability.
I would be intrigued to know what Mr. Leech or the Labour Party intend to do for people like myself, who have on-going medical conditions?
What we need is acess to facilities and easy acess to support and information to help us deal with the general day to day of living with MS e.g; some one to talk too who is in the same boat.
I am not ready to die yet and do not wish to be treated as though I am, or like an idiot.
You should remember that disabled people do have the right to vote and do have the intelligence to use our vote in a stand, where we will be counted.
I am also not brain dead yet, my legs may not work properly any more but my brain is still active!
Remember that and do not let any one ever think otherwise.
Patricia Gough
MS suferer
Elvira Braun
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Sadly
13.01.2006 01:06
This is not the only source of info on the net, and I assume you will try other avenues for (more) practical support.
Lenny
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